Advocacy and empowerment
Aug 14, 2021
11am - 2 pm
Investigating and Engineering Genetics in Sickle Cell Anemia
This program is supported via a grant from Global Blood Therapeutics, Inc.
THIS INFORMATION PERTAINS TO MEETINGS IN PERSON
There is a Participation Agreement that the attendees have to sign with the “rules of the road” during the sessions.
*We do not want, nor do we expect, that the presenters will render any care while they are the presenter, with the exception of a life-threatening emergency. It will be spelled out that you will not refill or fill any prescriptions for anything during these sessions or at any time otherwise while you are presenting, whether you know the attendee or not.*
Thank you for taking part in this remarkable opportunity to raise awareness for the sickle cell disease community and support the good work being done by SCAA. This year and the past year have been a special time for us. We have gone through many ups and downs in this pandemic, and this has made an impact on our life. As we see the light at the end of the tunnel, we can start to come together to take part in the world again. Some of you may know or may not know September is Sickle Cell Disease Awareness month. Let us all unite and participate in our Annual KMJ SC Warrior Walk this coming September as we recognize those struggling with this disease and those that have already passed on from this disease.
Dr. Judy Cavazos, Ph.D.
Judy Cavazos, PhD is a Clinical Psychologist at UCSF Benioff Children's Hospital Oakland in the Department of Hematology, working with patients living with SCD and their families, the Department of Gastroenterology, and in the Department of Psychiatry with the Behavioral Emergency Response Team within the Emergency Department assisting patients with crisis de-escalation and completing 5150 assessments for youth who are suicidal or have attempted suicide. She also serves as a member of the integrative medicine and pain committees at UCSF, pursues research on sickle cell disease, and completes neuropsychological evaluations with adult patients with sickle cell. For the last 14 years, Dr. Cavazos has worked with underserved youth and their families at two different children's hospitals and several community mental health and medical clinics, working with individuals affected by mental health and medical issues, domestic violence, HIV/AIDS, immigrant families, and youth involved in the criminal justice system.
Location: South Beach Harbor Meeting Rm. Pier 40A, The Embarcadero, San Francisco, CA 94107
(GPS Address: 899 Second Street, S.F., CA)
Meetings Times: 11am – ~1pm
In January 2020 SCAASF launched the Advocacy and Empowerment Program (AEP) with sessions once a month at the South Beach Harbor Community room located 3 blocks from AT&T Ballpark in San Francisco.
The program is created for all stakeholders (clients, caregivers, medical students, medical professionals and advocates). It is designed to explore advocacy and educate to be empowered.
The Advocacy and Empowerment Program is comprised of two primary segments.
The first portion of the webinar is designed to introduce the audience to core educational content and the exploration of self-advocacy.
The second portion of the webinar is the implementation of the educational content learned, with journaling, some role playing, along with discussions pertaining to real-world experiences.
There will be a variety of presenters’ clients, nurses, physicians and key professionals sharing and discussing issues to engage attendees.