Our Organization

Sickle Cell Anemia Awareness San Francisco came into existence in June 2014, a year after my son, Kareem Marcellas Jones (36 years young) passed away from the effects of this vicious disease. 

EIN: 47-1268974

Mission:

To broaden public awareness about Sickle Cell Disease, advocate for patients and SCD community at large for access to quality compassionate healthcare, empower through education and lastly, establish a Sickle Cell Care & Resource Center in San Francisco.

Vision:

Our vision is to work collectively with key stakeholders as a united voice to develop positive strategies for improvement in healthcare and create a more comprehensive experience for the patients and their families.

 

Our Objective:

Our objective is to clarify the needs of the people living with sickle cell disease and remove the stigmas and biases. The keys to improvement is trust, communication, compassion and quality care. Further education for clinicians, physicians and healthcare providers would be tremendously helpful. As we strengthen those areas and reinforce the use of effective listening this will build better relationships between people living with sickle cell disease and providers in the ED or Doctors office.  

This will also result in fewer cases of the 3Ms:

Misunderstanding, Mistreatment, Misdiagnosis

Currently SCAA provides the following:

  • Education on SCD & Trait

  • Internship Program for Youth

  • Intake/Assessment for Sickle Cell Patients

  • Peer & Support Group Meetings

  • Advocacy & Empowerment Program (AEP)

A Sickle Cell Care and Resource Initiative of San Francisco will give SCAASF the opportunity to offer additional services to the patients such as:

  • Transition from pediatric to adult care

  • Access to mental health services & health counseling                       

  • Access available social programs

  • Neuropsychological testing for school placement and services

  • Health care system navigation

  • Job training and resources

  • Educational counseling and support

 

Events & Activities:

Blood Drives - two drives a year

SCAA Fitness Day - collaborating with B-Magic

KMJ Wine n' Sign - Day before walk - make signs

KMJ Warrior Walk - September (Sickle Cell Awareness month)

Advocacy and Empowerment Program (AEP) - Nine-month program

SCAA Support Group - Monthly Meetings

 

SCAA Partnerships/Sponsors:

Global Blood Therapeutics

UC Benioff - CA State Action Plan; Sickle Cell Care Coordination Initiative/UCSF Benioff Registry

Western States Sickle Cell Disease Clinical Trials/UC Benioff - Community Advisory Board

Cayenne Wellness -  Conducting patient intake/assessments; Advocacy & Empowerment Program 

Zuckerberg SF General Hospital - weekly tabling - engage and reach out to patients

UCSF - working with two Hospitalist - to improve care for people living with SCD & data collection

With our efforts and your support we can get the recognition this disease and the patients so desperately need to give them hope for a better quality of life.  

 

"Help us make this disease a disease of the past and not the future."

Our Team

Contact US

Phone: NeDina Brocks-Capla (415) 720-4458

Email: crisis@scaasf.org

Sickle Cell Anemia Awareness of San Francisco (SCAASF).

A registered 501(c)3 non-profit organization.

EIN: 47-1268974

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This website is dedicated to my son, Kareem Marcellas Jones