Spread awareness of sickle cell anemia
Provide support to the families coping with a diagnosis of this disease.
“To increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.”
A medical system that effectively addresses the unique needs of individuals with sickle cell disease
Patients who are empowered and equipped to advocate for themselves.
Mental Health Services offered free
UCSF Benioff Children's Hospital
West SCD CTN Data Registry
In collaboration with the American society of hematology, SCAASF is a part of the community advisory board for Clinical Trials Network.
Foundation for Sickle Cell Disease Research
Foundation for Sickle Cell Disease Research (FSCDR) was founded by Dr. Lanetta Bronté in December 2012 after working closely with the sickle cell community and noticing the extreme lack of care for a disease that affects 3 million people nationwide. Dr. Bronté serves as principal investigator on grants and industry-sponsored trials in sickle cell disease.
The FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, and those living with sickle cell disease. Working collaboratively with academia, pharmaceutical, biotechnology, and community organizations, the best practices are identified to help with the management and future care of people living with sickle cell disease. We are accepting new clients daily and also offer free screenings. Know your sickle cell status!
To learn more, visit FSCDR at http://fscdr.org
Networking California for Sickle Cell Care
"The Networking California for Sickle Cell Care Initiative (NCSCC) was developed through advocacy and stakeholder engagement supported by data."
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