Sickle Cell Anemia Awareness San Francisco came into existence in June 2014,
a year after my son, Kareem Marcellas Jones
(36 years young) passed away from the effects
of this vicious disease.
For more information, see Dedication.
To broaden public awareness about Sickle Cell Disease, advocate for patients and SCD community at large for access to quality compassionate healthcare, empower through education and lastly, establish a Sickle Cell Care & Resource Center in San Francisco.
Currently SCAA provides the following:
▪Education on SCD & Trait
▪Internship Program for Youth
▪Intake/Assessment for Sickle Cell Patients
▪Peer & Support Group Meetings
▪Advocacy & Empowerment Program (AEP) (coming in January 2020)
A Sickle Cell Care & Resource Initiative of San Francisco will give SCAASF the opportunity to offer additional services such as:
▪Transition from pediatric to adult care
▪Access to mental health services & health counseling
▪Access available social programs
▪Neuropsychological testing for school placement and services
▪Health care system navigation
▪Job training and resources
▪Educational counseling and support
Our vision is to work collectively with key stakeholders as a united voice to develop positive strategies for improvement in healthcare and create a more comprehensive experience for the patients and their families. STRENGTH IN NUMBERS! You WIN in mass.
Our objective is to clarify the needs of the patients affected by SCD and dismiss the stigmas and biases. The keys to improvement is trust, communication, compassion and quality care. Further education for clinicians, physicians and healthcare providers would be tremendously helpful. As we strengthen those areas and reinforce the use of effective listening we believe this will build better relationships between patients and providers in the ED or Doctors office.
This will also result in fewer cases of the 3Ms:
Misunderstanding, Mistreatment, Misdiagnosis
Events & Activities:
Blood Drives - 2 drives a year
Fitness Day - held in August every year collaborating with B-Magic
Wine n' Sign - Day before the walk- to make signs for the walk
KMJ Warrior Walk - held in September (Sickle Cell Awareness month)
UC Benioff - CA State Action Plan & Sickle Cell Care Coordination Initiative/UC Benioff Registry
Cayenne Wellness - Conducting patient intake/assessments; Advocacy & Empowerment Program
Zuckerberg SF General Hospital - tabling weekly to engage and reach out to patients
UCSF - Working to improve care for SCD patients & data collection
With our efforts and your support we can get the recognition of this disease and the patients so desperately needs to give them hope for a better quality of life.
"Help us make this disease a disease of the past and not the future."