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Advocacy and Empowerment Program
Advocacy is a process.
Self Advocacy is the ability to articulate one's needs & make informed decisions about the support necessary to meet those needs.
Empowerment is preparing people to take control.
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Do you know anyone or does someone in your family have Sickle Cell Disease (SCD)?
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Are you a caregiver or advocate?
This is the program for you!
Dr. Ted Love, MD,
Former CEO, Global
Blood Therapeutics
& Vice-Chair
"Dr. Love joined GBT in June 2014 as president and chief executive officer with broad leadership and management experience in the biotech/pharmaceutical industry. Before that, he was executive vice president, research and development and technical operations, at Onyx Pharmaceuticals, Inc., where he played an instrumental role in the approval of Kyprolis® for multiple myeloma. Prior to Onyx, Dr. Love served as president, chief executive officer and chairman of Nuvelo. Prior to that, he served as senior vice president, development, at Theravance. Earlier in his career, Dr. Love held a number of senior management positions in medical affairs and product development at Genentech, where he served as chairman of Genentech’s Product Development Committee. As vice president, product development, Dr. Love oversaw the development strategy and execution leading to approvals of Rituxan®, Herceptin®, Xolair®, TNKase®, Raptiva® and Avastin®. Dr. Love served as a consultant in medicine in the Department of Cardiology at the Massachusetts General Hospital. He currently serves on the boards of directors of Royalty Pharma and Seagen. He is also on the boards of Life Science Cares Bay Area and the Biotechnology Innovation Organization (BIO). Dr. Love holds a B.A. in molecular biology from Haverford College and an MD from Yale Medical School. He completed a residency in internal medicine and a fellowship in cardiology at the Massachusetts General Hospital."
Dr. Kobe Dufu,
PhD, Researcher
& Discoverer
"Dr. Kobe Dufu immigrated from Ghana and holds a PhD in Molecular and Cell biology from Harvard Medical School. With 18 years of industry research and development experience at companies including Biogen, GBT and Pfizer, Kobe has expertise in rare hematological diseases, a strong publication record and proven success at progressing drug discovery programs for both small molecules and biologics from target identification through preclinical and clinical development to approval. Noteworthy contributions include the FDA approved drugs ELOCTATE and Oxbryta, which received the Prix Galien award for Best Biotech Product in 2021. In his current role as the head of cell and translational biology at GBT (a wholly owned subsidiary of Pfizer), Kobe’s main goal is to develop better and safer drugs for patients with rare and/or orphan diseases. As one of the discoverers of GBT601, a potent polymerization inhibitor being developed by Pfizer for the treatment of sickle cell disease, Kobe feels optimistic about the potential to provide a functional cure in a pill to patients with sickle cell, a disease which affects his family."
Schedule (Presenter List):
All of the presenters have been confirmed.
*Upon completion of attending several sections program you can receive a Health and Wellness Backpack filled with assorted essentials you can utilize when going to the hospital, during your stay at the hospital and when you are leaving the hospital. You must register in advance for all meetings either through our email reminders or the registration button found at the top of this page.*
Items inside the backpack include:
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Blanket
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Water Bottle
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Journals
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Pen
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Hertz Nazaire Coloring Book
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50 Coloring Pencils
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Mindfulness links/recording - Jason
Program Details:
Location: Virtual Only on Zoom
Meetings Times: 11am – ~1pm
History:
In January 2020 SCAASF launched the Advocacy and Empowerment Program (AEP) with sessions once a month at the South Beach Harbor Community room located 3 blocks from AT&T Ballpark in San Francisco.
Description:
The program is created for all stakeholders (clients, caregivers, medical students, medical professionals and advocates). It is designed to explore advocacy and educate to be empowered.
The Advocacy and Empowerment Program is comprised of two primary segments.
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The first portion of the webinar is designed to introduce the audience to core educational content and the exploration of self-advocacy.
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The second portion of the webinar is the implementation of the educational content learned, with journaling, some role playing, along with discussions pertaining to real-world experiences.
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There will be a variety of presenters’ clients, nurses, physicians and key professionals sharing and discussing issues to engage attendees.
