Advocacy and Empowerment Program

Advocacy is a process.

Self Advocacy is the ability to articulate one's needs & make informed decisions about the support necessary to meet those needs.

Empowerment is preparing people to take control.

  • Do you know anyone or does someone in your family have Sickle Cell Disease (SCD)?

  • Are you a caregiver or advocate? 

This is the program for you!

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Schedule (Presenter List):

Program Details DURING COVID-19:

Location: Via Zoom Video Conference
Meetings Times: 11am – 2pm

History:

In January 2020 SCAASF launched the Advocacy and Empowerment Program (AEP) with sessions once a month at the South Beach Harbor Community room located 3 blocks from AT&T Ballpark in San Francisco. 

Description:

The program is created for all stakeholders (clients, caregivers, medical students, medical professionals and advocates). It is designed to explore advocacy and educate to be empowered. 

 

The Advocacy and Empowerment Program is comprised of two primary segments.

  • The first portion of the webinar is designed to introduce the audience to core educational content and the exploration of self-advocacy.

  • The second portion of the webinar is the implementation of the educational content learned, with journaling, some role playing, along with discussions pertaining to real-world experiences.

  • There will be a variety of presenters’ clients, nurses, physicians and key professionals sharing and discussing issues to engage attendees.

*Upon completion of attending several sections program you can receive a Health and Wellness Backpack filled with assorted essentials you can utilize when going to the hospital, during your stay at the hospital and when you are leaving the hospital. You must register in advance for all meetings at www.scaasf.org.

All of the presenters have been confirmed.

 

*Due to COVID-19 all of the session will be conducted thru Zoom video conference until such time we can meet in person. The sign on information will be sent to you through evite. 

The outcome of this program is vital to the future for people living with SCD.
This program is supported via a grant from Global Blood Therapeutics, Inc.