Advocacy and Empowerment Program

Advocacy is a process.

Self Advocacy is the ability to articulate one's needs & make informed decisions about the support necessary to meet those needs.

Empowerment is preparing people to take control.

  • Do you know anyone or does someone in your family have Sickle Cell Disease (SCD)?

  • Are you a caregiver or advocate? 

This is the program for you!

Program Details DURING COVID-19):

Location: Via Zoom Video Conference
Meetings Times: 11am – 2pm


In January 2020 SCAASF launched the Advocacy and Empowerment Program (AEP) with sessions once a month at the South Beach Harbor Community room located 3 blocks from AT&T Ballpark in San Francisco. 


The program is created for all stakeholders (clients, caregivers, medical students, medical professionals and advocates). It is designed to explore advocacy and educate to be empowered. 


The Advocacy and Empowerment Program is comprised of two primary segments.

  • The first segment of the 3 hour intensive workshop is designed to introduce clients to core educational content and the exploration of self-advocacy.

  • The second segment is the implementation of the educational content learned, with journaling, role playing, along with discussions pertaining to real-world experiences.

  • There will be a variety of presenters’ clients, nurses, physicians and key professionals sharing and discussing issues to engage attendees.

*Upon completion of the entire program you can receive a Health and Wellness Backpack filled with assorted essentials you can utilize when going to the hospital, during your stay at the hospital and when you are leaving the hospital. You must register in advance for all meetings at

Schedule (Presenter List):

All of the presenters have been confirmed.


*Due to COVID-19 all of the session will be conducted thru Zoom video conference until such time we can meet in person. The sign on information will be sent to you through evite. 


There is a Participation Agreement that the attendees have to sign with the “rules of the road” during the sessions.

*We do not want, nor do we expect, that the presenters will render any care while they are the presenter, with the exception of a life-threatening emergency. It will be spelled out that you will not refill or fill any prescriptions for anything during these sessions or at any time otherwise while you are presenting, whether you know the attendee or not.* 

more Information:  CONTACT US 

The outcome of this program is vital to the future for people living with SCD.
This program is supported via a grant from Global Blood Therapeutics, Inc.