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Advocacy and Empowerment Program.

Advocacy is a process.

Self Advocacy is the ability to articulate one's needs & make informed decisions about the support necessary to meet those needs.

Empowerment is preparing people to take control.

  • Do you know anyone or does someone in your family have Sickle Cell Disease (SCD)?

  • Are you a caregiver or advocate? 

This is the program for you!

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Artis Grant

ARTIS GRANT is a Harvard Law School graduate (1974). He received his Bachelor of Arts degree with honors from UCLA. He was actively involved in civil litigation, including insurance defense, medical malpractice, forensic medicine, employment law, and education law. Before starting his own law firm, he was an associate with Lawler, Felix, and Hall. Before retiring several years ago, he was a member of the California, Oregon, and Washington bars. He served four years as an Army JudgeAdvocate. He practiced in California for more than 40 years and his last 20 years of practice were also in the state of Washington. He served on numerous boards of directors, like the American Red Cross, the Pacific Northwest African American Museum, The Tacoma Art Museum, and the Tacoma Men’s Wednesday Morning Prayer Group.  He was born in Los Angeles, grew up in Los Angeles, and graduated from Los Angeles High School. He is married and has two adult children.

Schedule (Presenter List):

All of the presenters have been confirmed.

* If you register and attend several sessions, you can receive a SCAA Health and Wellness backpack. The items inside the backpack include assorted essentials you can utilize when going to the hospital, during your stay at the hospital and when you are leaving the hospital. *

Items inside the backpack include:

  • Blanket 

  • Water Bottle 

  • Journals 

  • Pen

  • Hertz Nazaire Coloring Book

  • 50 Coloring Pencils

  • Mindfulness links/recording - Jason

Program Details:

Location: Virtual Only on Zoom

Meetings Times: 11am to about 1pm

Description:

The program is created for all stakeholders (clients, caregivers, medical students, medical professionals and advocates). It is designed to explore advocacy and educate to be empowered. There will be a variety of presenters’ clients, nurses, physicians and key professionals sharing and discussing issues to engage attendees.

 

The Advocacy and Empowerment Program is comprised of two primary segments.

  • The first portion of the webinar is designed to introduce the audience to core educational content.

  • The second portion of the webinar is the implementation of the educational content learned, with journaling, along with discussions pertaining to real-world experiences

2024 AEP SESSION
Dioscovite as a supplement? | SCAASF AEP 2024
01:50:33

Dioscovite as a supplement? | SCAASF AEP 2024

This session is hosted by Christen Brown, along with Dr. Ogi who shares why Dioscovite is a great natural supplement for sickle cell patients as "the American diet is deficient in nutritional thiocyanate." Dr. Oji Agbai, N.D. PhD. discovered the effectiveness of Dioscovite against sickle cell in 1983. The active ingredient in Dioscovite is Thiocyanate, which is also known as the Yam vitamin. It is an extract from African yams. Thiocyanate stops the cells from sickling, clumping up or sticking. Thiocyanate allows oxygen for the cells, so they don't sickle. As a result, it can build own blood and have energy. (read more here: https://sicklecellwarriors.com/sc-remedy-dioscovite/) Product link: https://international-health-support-group-store6.mybigcommerce.com/ --------------------------------------------- *Disclaimer*: Please note that SCAASF does not endorse this product nor affiliated with it. We are grateful to have them be our guest speakers and share their experiences. There may be some error in captions as audio is not clear. If you have any questions about the product itself or the content, what Dr. Ogi Agbai had said. Please reach out to Dr. Ogi (918-850-4240) or visit their webpage: https://international-health-support-group-store6.mybigcommerce.com/ -------------------------------------------------------- Sign up for our next session here about Iron overload (May 11, 2024 at 11am): https://www.scaasf.org/advocacy-and-empowerment Visit scaasf.org for our list of programs and how we can support you. ----------------------------------------------------------- 00:00:00- 00:02:31 - Intro to yam vitamin, its purpose 00:14:41- Wild yam? 00:15:39- Is this supplement safe for children? Side effects? 00:18:02 - If people want to switch diets rather than supplements, what should they do? 01:45:09- How to find or connect with SCAASF?
2023 AEP Sessions
Mental Health for Sickle Cell Patients- SCAASF AEP Session
02:07:24

Mental Health for Sickle Cell Patients- SCAASF AEP Session

This session features Dr. Carolyn Rowley This is a recorded session of where Dr. Rowley talks about her experiences in treating patients and families with sickle cell disease, and successful living for patients. "Dr. Carolyn Rowley is the Founder and Executive Director of Cayenne Wellness Center and Children’s Foundation (a non-profit organization dedicated to health and wellness). In her role as Executive Director, she specializes in nutrition (well known for her 3-4-4 nutritional program), health psychology and treating patients and their families with sickle cell disease. She also began another non-profit organization in 2005, as a result of her missionary experience to Kenya, East Africa (The Machao Orphanage Foundation). ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2023 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 1-2 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2023 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
Navigating Healthcare Resources - SCAA SF AEP 2023
52:44

Navigating Healthcare Resources - SCAA SF AEP 2023

This session features SCAASF Outreach Coordinator/Excel Channel Host & SCAASF Community Health. This is a recorded session of an in depth workshop on helping SCD community find resources within their county to increase their daily quality of life and financial assistance. This workshop will teach you to find these readily available resources and understand the documents given when you apply so you can apply and receive aid successfully. Below are topics touched upon: 0:00:05- What is "In Home Care services"? 0:09:36- IHSS Covered Services 0:31:18- IHSS Hourly Task Guideline 0:32:50- Right to Appeal 0:36:26 - Pay Rates 0:38:31 - Genetic Handicap Person Program - Sickle Cell Disease Association of America - Supplement - SCAASF client Assistance for financial hardship - Medi-Cal enrollment ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2023 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 1-2 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2023 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
What is Sickle Cell? | SCAA AEP 2023  Ted Love, Kobe Dufu
02:10:10

What is Sickle Cell? | SCAA AEP 2023 Ted Love, Kobe Dufu

This is a recorded panel session features Dr. Ted Love and Dr. Kobe Dufu. Dr. Ted Love joined GBT in June 2014 as president and chief executive officer with broad leadership and management experience in the biotech/pharmaceutical industry. Dr. Kobe Dufu immigrated from Ghana and holds a PhD in Molecular and Cell biology from Harvard Medical School. With 18 years of industry research and development experience at companies including Biogen, GBT and Pfizer, Kobe has expertise in rare hematological diseases, a strong publication record and proven success at progressing drug discovery programs for both small molecules and biologics from target identification through preclinical and clinical development to approval. ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2023 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 1-2 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2023 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
2022 AEP Sessions
SCAA SF AEP 2022- New Sickle Cell Therapy
02:07:50

SCAA SF AEP 2022- New Sickle Cell Therapy

This session features Dr. Madhav Vissa, a pediatric hematologist-oncologist who specializes in inherited blood disorders, such as sickle cell disease and thalassemia. Since SC diseases affect individuals throughout their lives, he is grateful to have training that allows him to continue working with his patients as they leave childhood behind. He has a particular interest in the transition from pediatric to adult care and hopes to partner with adolescents and young adults as they learn to take ownership of their health. He also cares for children with blood cancers and other blood disorders. In research, Vissa examines how new blood disorder treatments can target an individual patient's symptoms, with the goal of tailoring treatment plans for each patient. Vissa earned a master's degree in human nutrition from Columbia University before earning his medical degree at SUNY Downstate Health Sciences University. He completed a residency in internal medicine and pediatrics at the University of Pittsburgh Medical Center, where he served as chief resident. At UCSF Benioff Children's Hospital Oakland, he completed a fellowship in pediatric hematology and oncology. ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2022 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 2-3 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2022 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
SCAA SF AEP 2022- Art of Advocacy
01:48:07

SCAA SF AEP 2022- Art of Advocacy

This session features Eugene Canson, a public health professional and community advocate who is passionate about improving the health and well-being of individuals in underserved and marginalized communities. Eugene believes that public policy and community advocacy has a significant impact on population health and well-being. Therefore, in efforts to improve the vitality, longevity, and well-being of our communities, he continues to be an advocate for equitable policies and solutions that positively impact society. Since moving to the Bay Area in 2018, Eugene has worked diligently to advocate for innovative and proactive solutions in efforts to address the alarming health inequities that exist in California. Eugene holds a Master of Public Health (MPH) from Indiana University, and a Bachelor of Science (B.S.) from Pacific Union College. He is also an inducted member of the Delta Omega National Honorary Society for studies in public health. ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2022 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 2-3 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2022 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
SCAA SF AEP 2022- The Secret to Relationships
01:54:29

SCAA SF AEP 2022- The Secret to Relationships

This session features Shirley Powell, a sickle cell warrior, who was led on a journey of discovering a holistic way to overcome her health challenges through God’s natural provisions and living by holistic principles. For the next 25 years, she experienced only two pain episodes, and she was able to experience vigor and vitality that she did not know was possible, without any drugs or surgery. She also permanently overcame hypothyroidism, eczema, IBS, chronic UTI’s and URI’s, and other issues. In 2001, she co-founded and was the executive director of an alternative medicine practice and health ministry in metro D. After formal coursework through the International Institute of Original Medicine, in 2005, she received her degree as a Doctor of Naturopathy, Certified Health Practitioner, and Certified Nutrition Counselor, specializing in corrective and remedial nutrition for healing, wellness, and weight loss. She then launched Temple Care: Body, Mind & Spirit, a holistic natural healing and wellness practice, helping people overcome a variety of health challenges. Until her semi-retirement in 2016, she had offices in Northeast Alabama, Maryland, and the DC metropolitan area. She is author of "Making Friends With Food - Honoring the Body Temple Nutritionally; from 2005 to 2015, she was writer and editor of monthly e-newsletter, "Healthy Living"; she has been host and guest on various health and wellness radio programs; conducted healthy food preparation demonstrations; taught Overcoming Abuse and Setting Boundaries for the Christian Women's Job Corp; and had been a member and volunteer of various service and outreach organizations. She is originally from North Jersey, lived in the DC metro area for three decades, lived in northeast Alabama for ten years, and is now happily a resident of Southern California. ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2022 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 2-3 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2022 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
SCAA SF AEP 2022- Mental Health & Brain Health
01:53:22

SCAA SF AEP 2022- Mental Health & Brain Health

This session features Judy Cavazos, PhD is a Clinical Psychologist at UCSF Benioff Children's Hospital Oakland in the Department of Hematology, working with patients living with SCD and their families, the Department of Gastroenterology, and in the Department of Psychiatry with the Behavioral Emergency Response Team within the Emergency Department assisting patients with crisis de-escalation and completing 5150 assessments for youth who are suicidal or have attempted suicide. She also serves as a member of the integrative medicine and pain committees at UCSF, pursues research on sickle cell disease, and completes neuropsychological evaluations with adult patients with sickle cell. For the last 14 years, Dr. Cavazos has worked with underserved youth and their families at two different children's hospitals and several community mental health and medical clinics, working with individuals affected by mental health and medical issues, domestic violence, HIV/AIDS, immigrant families, and youth involved in the criminal justice system. ----------------------------------------------------------------------------------------------------------------------- ABOUT: The 2022 Advocacy and Empowerment Program Course Training is a program for the sickle cell community inspired by Sickle Cell Anemia Awareness of San Francisco, non-profit. This program spans over 9 months of the year, with one 2-3 hour meeting sessions every month. It is led by experienced sickle anemia disease medical professionals and patient community leaders who are working to broaden awareness and improve healthcare for sickle cell patients. For more information about our organization and resources, visit: https://www.scaasf.org/ For information about our 2022 Advocacy and Empowerment program and list of speakers, visit: https://www.scaasf.org/advocacy-and-empowermentt
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