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Advocacy and Empowerment Program.

Advocacy is a process.

Self Advocacy is the ability to articulate one's needs & make informed decisions about the support necessary to meet those needs.

Empowerment is preparing people to take control.

  • Do you know anyone or does someone in your family have Sickle Cell Disease (SCD)?

  • Are you a caregiver or advocate? 

This is the program for you!

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Upcoming AEP Session: August 16th at 11:00 AM

Featuring: Lamar Jones

Championing Mental Health Equity & Uplifting Communities of Color 

    Lamar Jones currently serves as a clinical therapist with Blended Roots Therapy through the Cayenne Wellness Center program, where he provides culturally responsive mental health services to people of color, particularly men of color and individuals living with Sickle Cell Disease. Over the past year and a half, Lamar has supported this community with compassion and purpose, describing the experience as both an honor and a deepening of his life’s calling.

 

    Lamar is a dedicated social worker with a strong commitment to addressing systemic inequities in low-income and marginalized communities, approaching these issues through a lens of cultural humility and equity. A two-time graduate of the California State University system, he earned his B.A. in Sociology from California Polytechnic State University, Pomona, and an M.S.W. from California State University, Northridge, where he specialized in urban populations.

 

    In his current role as Program Specialist and Data Analyst for the Umoja Program at Fullerton College, Lamar provides vital resources and holistic support to over 300 students, empowering them to achieve academic and personal growth. His work goes beyond the classroom—he is a consistent force in community advocacy and student-centered activism.

 

    Lamar’s community involvement includes organizing and participating in protests for student rights, immigrant justice, the Black Lives Matter movement, and the Stop Asian Hate movement. He’s served meals and hope on Skid Row, worked with the L.A. County Department of Education, and represented students on the admissions committee at Cal State Northridge. His efforts to close equity gaps were highlighted when he presented at the EOP&S 53rd Annual Conference and hosted Fullerton College’s first Black Graduation ceremony in the Spring of 2024.

 

    As a former foster youth and advocate for that community, Lamar has remained deeply involved in mentoring, currently guiding students through the Mentor Match program at Fullerton College. He has also shared his journey and insights on panels at Cal Poly Pomona and the Ontario-Montclair School District. Whether through therapy, education, or grassroots advocacy, Lamar Jones is a powerful voice for social justice, a mentor to the next generation, and a tireless advocate for equity, particularly for those often overlooked, such as individuals living with Sickle Cell Disease.

Schedule (Presenter List):

All of the presenters have been confirmed.

* If you register and attend several sessions, you can receive a SCAA Health and Wellness backpack. The items inside the backpack include assorted essentials you can utilize when going to the hospital, during your stay at the hospital and when you are leaving the hospital. *

Items inside the backpack include:

  • Blanket 

  • Water Bottle 

  • Journals 

  • Pen

  • Hertz Nazaire Coloring Book

  • 50 Coloring Pencils

  • Mindfulness links/recording - Jason

Program Details:

Location: Virtual Only on Zoom

Meetings Times: 11am to about 1pm

Description:

The program is created for all stakeholders (clients, caregivers, medical students, medical professionals and advocates). It is designed to explore advocacy and educate to be empowered. There will be a variety of presenters’ clients, nurses, physicians and key professionals sharing and discussing issues to engage attendees.

 

The Advocacy and Empowerment Program is comprised of two primary segments.

  • The first portion of the webinar is designed to introduce the audience to core educational content.

  • The second portion of the webinar is the implementation of the educational content learned, with journaling, along with discussions pertaining to real-world experiences

2025 AEP Session
Lyfgenia EXPLAINED with bluebird bio  | SCAASF AEP 2025
01:27:04
Legal patient rights and how to navigate  | SCAASF AEP 2025
01:43:36
2024 AEP SESSION
Understanding Dept of Rehabilitation |SCAA AEP 2024
01:16:10
Curative therapy for sickle cell  | SCAASF AEP 2024
51:29
How iron overload effects your body and how to prevent it  | SCAASF AEP 2024
01:12:09
Dioscovite as a supplement? | SCAASF AEP 2024
01:50:33
WHY Brain Health is important and Resources  | SCAASF AEP 2024
01:50:56
Advocate for yourself | SCAASF AEP 2024
01:20:59
2023 AEP Sessions
Is Stem & Gene Therapy For You? Managing the Sickle Cell Identity Crisis- SCAASF AEP Session
02:00:42
Mental Health for Sickle Cell Patients- SCAASF AEP Session
02:07:24
Navigating Healthcare Resources - SCAA SF AEP 2023
52:44
Nothing is "Impossible" - SCAA SF AEP 2023
01:37:11
Health Disparities in Sickle Cell Treatment - SCAASF AEP Session
01:12:36
NUTRITION | Sickle Cell Patients | SCAASF AEP Session
02:12:40
What is Sickle Cell? | SCAA AEP 2023  Ted Love, Kobe Dufu
02:10:10
2022 AEP Sessions
SCAA SF AEP 2022- New Sickle Cell Therapy
02:07:50
SCAA SF AEP 2022- Art of Advocacy
01:48:07
SCAA SF AEP 2022- The Secret to Relationships
01:54:29
SCAA SF AEP 2022-The Future of SCD Treatments
03:14:26
SCAA SF AEP 2022- Bone Health & Iron Overload with Dr. Bukari
01:57:36
SCAA SF AEP 2022- Primary Care for Children and Adults
02:38:14
SCAA SF AEP 2022- Mental Health & Brain Health
01:53:22
Investigating and Engineering Genetics i...
Clinical Trials EXPLAINED (SCAA SF AEP 2021) Part 7
03:01
Does Gene Therapy work for everyone? (SCAA SF AEP 2021) Part 10
05:07
Gene Therapy EXPLAINED (SCAA SF AEP 2021) Part 5
04:54
Real Challenges of Sickle Cell (SCAA SF AEP 2021) Part 9
03:06
Do the benefits of gene therapy outweigh the risks? (SCAA SF AEP) Part 8
05:19
Drug Development and Research EXPLAINED  (SCAA SF AEP 2021) Part 6
05:23
Research Study: Hemoglobin and Polymorphisms (SCAA SF AEP 2021) Part 4
10:56
Gene Variant of Sickle Cell Patients (SCAA SF AEP) Part 3
05:20
Motivational Speaker
1. Real Talk: Turn your liabilities into assets (SCAA SF AEP 2021)
14:21
2. We can’t control others’ perspectives (SCAA SF AEP 2021)
08:05
3. WIN  and discovering yourself (SCAA SF AEP 2021)
08:01
4. Al's Story (SCAA SF AEP 2021)
19:01
5. We win by choice. (SCAA SF AEP 2021)
04:51
6. Mental Health Reality (inspirational) (SCAA SF AEP 2021)
03:37
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Contact Us

Email: crisis@scaasf.org

Phone: ‪(408) 372-7694‬

Please send us an email if you find any inconsistencies in our website. We deeply value your opinion.

Sickle Cell Anemia Awareness of San Francisco (SCAASF)

A registered 501(c)3 non-profit organization.

EIN: 47-1268974

Hours, Closures, About Us

This website is dedicated to my son, Kareem Marcellas Jones

© Copyright 2014-2024 By Sickle Cell Anemia Awareness of San Francisco SCAASF. All Rights Reserved. (Please view in Desktop Mode if on mobile device)

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