Dedicated Funding for SCD Data Collection Efforts at CDC
US House of Representatives passed the fiscal year (FY) 2021 Labor, Health and Human Services, Education, and Related Agencies (Labor-HHS) spending bill on July 13, 2020; an amendment will be included for $2 million in dedicated funding for the SCD data collection program at CDC. This amendment offered by Representatives Danny Davis (D-IL) and Michael Burgess (R-TX) will help expand CDC's SCD Surveillance and Outreach Programs to cover a majority of SCD patients in the US over the next 5 years.
This dedicated Federal funding will:
"Improve understanding of the health outcomes and health care system utilization patterns of people with SCD"
"Increase evidence for public health programs and to establish cost‐effective practices to improve and extend the lives of people with SCD"
"To enable individuals living with this disease to receive adequate care and treatment"
Source: American Society of Hematology; House Committee on Appropriations