US House of Representatives passed the fiscal year (FY) 2021 Labor, Health and Human Services, Education, and Related Agencies (Labor-HHS) spending bill on July 13, 2020; an amendment will be included for $2 million in dedicated funding for the SCD data collection program at CDC. This amendment offered by Representatives Danny Davis (D-IL) and Michael Burgess (R-TX) will help expand CDC's SCD Surveillance and Outreach Programs to cover a majority of SCD patients in the US over the next 5 years.

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This dedicated Federal funding will:

• "Improve understanding of the health outcomes and health care system utilization patterns of people with SCD"

• "Increase evidence for public health programs and to establish cost‐effective practices to improve and extend the lives of people with SCD"

• "To enable individuals living with this disease to receive adequate care and treatment"

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Source: American Society of Hematology; House Committee on Appropriations