advocacy-empowerment-JusticE

MIMI

“When I’m in that moment of pain in the emergency room, I can’t even think for myself. The pain is debilitating and they’re asking me questions like, ‘Are you sure you have sickle cell? We need to look into this,’” says Mimi, a 37-year-old lawyer and mom of four.

LANCE

"No one in his family knew anything about sickle cell when he was diagnosed, and it had a devastating impact on his family. The news altered my family dynamic in a major way. My mom, a nurse at the time, lost her job because she needed to stay home and take care of me. Her career goals were gone."

Advocacy and empowerment

In 9 monthly workshops, we bring together SCD patients, advocates, and health care workers for wide-ranging learning. Themes include strategies for Emergency Room visits, resiliency through mindfulness, and self-advocacy.

Sickle Cell Support Group

 We host regular open forums for patients and their families to share with and learn from each other with a focus on self-advocacy. 

Partnerships/Sponsors

  • Global Blood Therapeutics

  • Foundation for Sickle Cell Disease & Research

  • Zuckerburg SF General Hospital

  • UCSF Benioff Children's Hospital

  • UCSF Medical Center at Parnassus

Internship

Open to high school and college students, our internship program provides a unique opportunity to engage in community organizing, health advocacy, and non-profit management. Positions vary--please inquire at crisis@scaasf.org

Be an advocate

We encourage all advocates and those interested in being an advocate to attend our 9 monthly Advocacy & Empowerment workshops.

KMJ Warrior Walk+Wine n'Sign

Join us for a private bar event whereby you can come make a sign for the walk and enjoy the company of all that will be attending. There will be food, entertainment and stimulating conversation.

KMJ Warrior Fitness Day

Join us for some healthy exercise and a chance to connect with other SCD patients, families, advocates, and health care workers.

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Contact US

Phone: NeDina Brocks-Capla (415) 720-4458

Email: crisis@scaasf.org

Sickle Cell Anemia Awareness of San Francisco (SCAASF).

A registered 501(c)3 non-profit organization.

EIN: 47-1268974

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This website is dedicated to my son, Kareem Marcellas Jones