News Room

COVID-19 Information

Gain an understanding of the global pandemic that is affecting millions and a virus that is more likely to severely impact people with underlying conditions, such as sickle cell anemia. 

Newsletter

Read our biweekly newsletter about developing sickle cell therapies and new legislation for the disease. Be updated on our upcoming events, current events/findings and progress on sickle cell disease and community.

Medical Therapies

Currently, the only cures for this disease is stem cell therapy or bone marrow transplant. However, the significant risks involved limit the use of them. Despite the limited treatments for it, there are medications to treat its symptoms. There are currently new  developments to the new treatments for the disease. Learn more about them by clicking on the button on the right.

Legislation

The US House of Representatives voted on the fiscal year (FY) 2021 Labor, Health and Human Services, Education, and Related Agencies (Labor-HHS) spending bill, an amendment will be included for $2 million in dedicated funding for the SCD data collection program at CDC. Read more about this spending bill, its benefits for the sickle cell community.

ASH Sickle Cell Guidelines

Cardiopulmonary and Kidney Disease in Sickle Cell Disease:

Screening and Management

A POCKET GUIDE FOR THE CLINICIAN

December 2019