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Resources
Youtube Channel
Check out our YouTube channel to stay updated on our events and program recordings.
COVID-19 Information
Gain an understanding of the global pandemic that is affecting millions and a virus that is more likely to severely impact people with underlying conditions, such as sickle cell anemia.
Newsletters
Read our biweekly newsletter about developing sickle cell therapies and new legislation for the disease. Be updated on our upcoming events, current events/findings and progress on sickle cell disease and community.
Legislation
The US House of Representatives voted on the fiscal year (FY) 2021 Labor, Health and Human Services, Education, and Related Agencies (Labor-HHS) spending bill, an amendment will be included for $2 million in dedicated funding for the SCD data collection program at CDC. Read more about this spending bill, its benefits for the sickle cell community.
ASH Sickle Cell Guidelines
Cardiopulmonary and Kidney Disease in Sickle Cell Disease:
Screening and Management
A POCKET GUIDE FOR THE CLINICIAN
December 2019