Partnership & Sponsors
Global Blood Therapeutics
So San Francisco, California
GBT is a clinical-stage biopharmaceutical company determined to discover, develop and deliver innovative treatments that provide hope to underserved patient communities. GBT is developing its late-stage product candidate, voxelotor (previously called GBT440), for the treatment of sickle cell disease.
GBT Announces Presentation of Six Studies at ASH Supporting Voxelotor Sickle Cell Disease (SCD) Program.
For more info
Foundation for Sickle Cell Disease Research
Sickle cell disease Expert for patients 17 and older
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Foundation for Sickle Cell Disease Research (FSCDR) was founded by Dr. Lanetta Bronté in December 2012 after working closely with the sickle cell community and noticing the extreme lack of care for a disease that affects 3 million people nationwide. Dr. Bronté serves as principal investigator on grants and industry-sponsored trials in sickle cell disease.
The FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, and those living with sickle cell disease. Working collaboratively with academia, pharmaceutical, biotechnology and community organizations, the best practices are identified to help with the management and future care for sickle cell patients.
We are accepting new patients daily and also offer free screenings. Know your sickle cell status! To enroll in the program, call the Foundation at 954-397-3251 or visit us at or email firstname.lastname@example.org.
UCSF Benioff Children's Hospital
The Sickle Cell Care Coordination Initiative
The Sickle Cell Care Coordination Initiative (SCCCI) seeks to improve care provided to youth and adults with sickle cell disease in Northern California. We are one of 8 programs in the U.S. funded by the National Heart, Lung and Blood Institute (NHLBI) to use implementation science to improve outcomes for individuals with sickle cell disease between the ages of 15 and 45 years.
The SCCCI brings together experts in sickle cell disease clinical care and clinical research, health services research, implementation and participatory research and emergency medicine. Their core team also includes individuals with sickle cell disease, their family members and dedicated community members.
Their aims are:
-increase the number of youth and adults with sickle cell disease who receive preventive care;
-support providers so they increase their adherence with evidence-based guidelines for sickle cell disease care; and
-support youth and adults with sickle cell disease to access needed resources within their communities to improve their quality of life and quality of care. The primary goal of the center is to decrease the preventable morbidity and mortality that this population is vulnerable to.
The mission of Cayenne Wellness is to spread awareness of sickle cell anemia and provide support to the families coping with a diagnosis of this disease. Please help us educate the public and medical providers about the necessities of sickle cell disease (SCD) testing and treatments.
“To increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” This mission is part of a broader vision of (1) a medical system which effectively addresses the unique needs of individuals with sickle cell disease and (2) patients who are empowered and equipped to advocate for themselves.
To reach this vision, our programs focus on education and awareness for providers, patients, and the general public.